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Patient Resources

Welcome to Insightful Moments™

Insightful Moments is a community education series of materials created to support patients with rare disease and their families.

Insightful Moments Educational Series Materials

Below, you will find pdf roadmaps to help you along your journey. Click the tile to open a single pdf, or check the box to download multiple pdfs at one time.

  1. CA Discovering Wellness - Coping and Accepting the Rare Disease Diagnostic Journey
    (PDF) (opens in new tab)
    Discovering Wellness – Coping and Accepting the Rare Disease Diagnostic Journey
  2. CA Discovering Wellness - Navigating Life with a Rare Disease
    (PDF) (opens in new tab)
    Discover Wellness – Navigating Life with a Rare Disease
  3. CA Holistic Inspirations - Personal space
    (PDF) (opens in new tab)
    Holistic Inspirations – Personal Space
  4. CA Holistic Inspirations - Personal preference
    (PDF) (opens in new tab)
    Holistic Inspirations – Personal Preference
  5. CA Holistic Inspirations - Personal connection
    (PDF) (opens in new tab)
    Holistic Inspirations – Personal Connection
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